The subject of sleep… (???)

Not that we all don’t say over and over again how nice it is to flip the computer on and read “our” stories over and over in the posts of our fellow D-mama’s, papa’s and PWD’s. But I gotta say…it’s amazing to me when I am right on the edge of that cliff (Meri, Our Diabetic Life) and wondering how the hell I’m going to continue to live without sleep (Joanne, Death of a Pancreas) again, amazing how I can read a few words offered by my D-peers and feel soooo OK all of a sudden. Even if it’s only for a few minutes…I feel ok.

On the subject of sleep.
When Ellie was diagnosed and we were in the first few days of hospital care, I truly had no clue what was really going on. The whole unit/carb/ketone/etc. thing just wasn’t something I had ever really absorbed into my head to have even an elementary understanding of what was going on. The nutritionist that came really wasn’t that informative, the nurses on the floor mostly looked at me with a little bit of pity/confusion. I received all these xerox papers with bits of information on carb counting, insulin action, etc. Looking back…there was really no way I was walking out of there feeling confident or educated about what we were going to do when we got home. One thing I now think back on is that I slept with her in the bed every night in the hospital. I didn’t sleep a regular schedule really, usually staying up late watching TV trying to relax myself while she slept. But when I did sleep, I slept without any thought of when I had to get up. The nurses were coming in on a schedule set and sealed, so I had no responsibility or knowledge of the middle of the night check that was soon to come.  Oh ya…AND (the key to the whole thing) she was hooked up to a heart and oxygen monitor…
Ahhh, now I remember!
A nurse asked me after the first night if I wanted them to remove the heart monitor stickers from her chest.  I wasn’t actually aware of why they were on in the first place and I still had no idea that her blood sugars were a matter of life or death…not to the extent that I understand it today.  But I remember looking at her and thinking…Ummm NO!  I don’t know why I was so quick to answer or what I was thinking, but I think something in me just said the more monitors the better.  So they stayed on, the whole 5 days  hooked up at night.  
I’m not even sure I know when I was told that I needed to do the 2am checks?  Jack was only 4 months old and really only beginning to sleep through the night.  So the 2am checks were sometimes challenging and sometimes I was going to be awake anyway.  Ignorance is bliss I guess.  Because as we all know…the 2am check isn’t just a 2am check.  Just like everything diabetes, every “bit of information” MEANS something and usually requires some sort of action or reaction or future action or decision…or something. 
So lets break it down.
Your told (at least I’m assuming most people are told) that you are to check blood sugar levels at least once at night.  We were told 2am.  It appears the actual time of said check can vary, but none the less at least once.  Most of us will be forced to set an alarm in order to accomplish this.  So you set your alarm and you wake the first night and you check it.  Now HOW MANY TIMES IS THIS NUMBER SATISFACTORY?  What they tell you is that IF the number is on target, close to target or acceptable you should be good to go and this will only be a practice in making sure your basal rates are set correctly.  At least that was the impression I was given (or what I wanted to hear) at the time of diagnosis.  I specifically remember asking our endo a few months in to this nighttime checking thing  when the checks at 2am were no longer going to be necessary.  I also specifically remember him looking at me and saying something like…when she can do them herself!!!  WHAT THA???  Now of course by the time I did ask the question, I already knew the answer.  Blood sugars are rarely stable or predictable day or night, but throw in a little honeymooning in the beginning and a lot of enlightenment over the last 10 or so months and you are ripe for numerous checks throughout the night and day…When she is on target in the middle of the night, well…it freaks me out a little to be honest with you.  I feel dread and question why she is on target (like who is fooling me, what sort of sick joke is this?).  Doesn’t it seem impossible that an individual can get the insulin levels correct?  Am I nuts or is this “moving target” not actually MOVING CONSTANTLY?!  What is this?  Now I have invested and use 24/7 a continuous glucose monitor on Ellie.  This little device was my hope to not only have a reliable back up at night, but my hopes were to be able to just sneak a peek at that handy-dandy little monitor see where she has been, see where she appears to be going, with a built-in alarm for lows and highs and ZZZZZ’s were in my future. 
Then the (???) comes into play.  Yes the ERROR message of Dexcom.  For 4 nights now, like friggin’ clockwork (???), it might as well announce, “NOPE, NOT TONIGHT SISTA, YOU’RE ON YOUR OWN!!!”.  Yeah, I wanna throw it, kick it and squeeze it to death when it does that!  Can you picture crazy D-mom squeezing the living sh*& out a small black device in the dark at 1:45am? I bet it’s hilarious! I do have to admit that when the Dexcom monitor has shown it’s best performance for a given amount of time, I do just peek at it in the night and take its word for it. But I can tell you the reliability of that little device leaves me doing an actual check about 98% of the time.  But for the most part…the check, the nighttime check, is a nightly ritual that one does for one reason…fear.
So I would offer a new question. Is it the lack  of sleep that we all miss and want to so desperately get back…or is it a night (whether asleep or not) of no fear?  No anxiety or worry?  I was explaining to my husband who is trying to offer some sort of help in the sleep department that I really don’t know that I can let go yet.  I could have Ray or my mother do a few nights a week with Ellie, affording me a few full nights of sleep.  But would I sleep or just lay there, wondering if all is ok?  There have been PLENTY of afternoons that I have been laying on the couch with Ellie and could have SO easily just fell asleep, but if she’s not sleeping and I’m not laying on top of the Dexcom and her blood sugars are not just so…I just can’t let myself fall asleep totally.  I have been waking in a panic for many nights now (numerous times in the night) feeling like I have let something slide, like I have failed my own daughter by being so damn weak to fall asleep.  This isn’t like a crying baby who is hungry but will survive…and will eventually wake you with the wailing of insecurity…this is stealth, and sneaky…deadly.  It’s irrational and horrible to be so damn scared all of the time.  Now I will say, most of the time everything is fine and we putter along dealing with this or that, wondering about the next reading or what did that, but then there are the WTF? moments of extremes.  The reality of the disease and its capabilities come around all sneaky and scary.  So my ultimate goal, short of purchasing and owning a heart and oxygen monitor is to let the sleep thing rest (ha! a pun?) and work on the fear, guilt, and anxiety. 

I hope by tackling and conquering fear, guilt and anxiety maybe I will be able to finally get some rest… if not even some sleep! 

What do you think?

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loss of a loved one.

My father in law passed away last week.  We as a family have feared this day for a couple of years, but I wouldn’t say that last Wednesday, November 10th when he collapsed, any of us expected it…not on that particular day.  He will be VERY missed and all of our lives will be changed permanently by this event. My father-in-law passed away Thursday, November 11th.  For us as his family it is a missing piece of a puzzle, our family puzzle, it’s permanent and it will never again be filled.  Though peace may come with time, the loss will stay with myself and our family forever.

Thank you DOC members who offered support and sympathy to me and mine…you all warm my little heart daily!!!  ((hugs))

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November 14th World Diabetes Day

What diabetes means to me…
January 19th 2010, Ellie Fincham (my daughter), Janell Fincham (my husband’s sister), Raymond Finchams mother (my husbands grandmother died at 28), My dad’s uncle (died at 6), The first time in my life I couldn’t escape consequences of life and living, Feet, Eyes, Legs, Heart, Kidneys, Fear (mind-boggling fear), Anxiety (beyond words), Injections with a needle in my daughters body…by me her mother…

A lot of wondering, is she ok? will she be ok? does it hurt? does she notice? if she eats…? if I bolus? if I don’t bolus? basal or bolus? will her liver save her from all the lows? will she wake? will I wake? is she breathing? what is her number? where will her number be? can she handle it? will she handle it? will she hate me? will she hate herself? will she just hate? can I help her? will she forgive? can I forgive? will they know to give her juice? will they call me when they need to? will they know if they need to? do they know how dangerous a low is? do they know how fast it can happen? will they watch her like I do? is she going to make friends? is she going to be confident? will she meet a man who can support her and watch over her like I do? will she lose a leg? will she go blind? will her kidneys fail her? can I stop it? what if I don’t control the numbers well enough? what if I do and she still goes blind? what will happen to her if something happens to me? what will happen to me if something happens to her? why…why does she have to have diabetes? why? why? why? why?

Now I know, to say thank you more, a little more about life, how to appreciate the importance of family, there is never enough time, people should simplify (literally), there will never be enough money, those who sacrifice their bodies, time, families to science and medical discoveries have given me a chance to keep my daughter alive, that I will do anything to make sure my babies are safe, anything, I am a good mother, my husband is a good father, my parents are amazing people and will sacrifice for my family without hesitation…because WE are ALL family, family is really the most important thing in life, I love my in-laws, I can sacrifice, my children are beautiful, my daughter is strong, I can love my step-daughters as much as I love my own children, there are good doctors, there is a HUGE support network of PWD and Caregivers on-line that keep me grounded and loved every time I flip the computer on!!!  THANK YOU ALL!

Note:  This blog post was not completed to my liking due to a loss in our family, but I wanted to post today…a very important day, so I had to just add the last sentence and post…Happy World Diabetes Day to all and ((Hugs)) to all who share!

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November 9th D-blog day

6 Things I Want People to Know About Diabetes:

1.  Diabetes isn’t controlled, it is managed.  People who have diabetes can be under control, but their diabetes is managed…never controlled.  You can’t control this disease you can only manage it. 

2.  Diabetes is not better or worse than cancer.  Cancer kills, diabetes kills.  Cancer hurts, diabetes hurts.  Cancer has long-term effects on people emotionally and physically.  Diabetes has long-term effects on people emotionally and physically.  There are treatments for both cancer and diabetes.  Cancer can go into remission, or be removed permanently…or it will kill the individual.  Diabetes can not go into remission, or be removed permanently, but it can kill an individual (and does).  I would not wish cancer OR  diabetes on anyone…I would not suggest one is better than the other either. 

3.  My daughter is 4.  She was diagnosed at 3 years old with Type 1 diabetes.  She received no less than 5 shots a day and 10 finger pokes a day for the first 4 months of her diagnosis.  At 5 months diagnosed she was able to wear an insulin pump and continuous glucose monitor (CGM) to manage her insulin delivery and better track and manage her blood glucose levels.  She is 3 feet 5 inches tall.  She weighs 42 lbs.  She has a plastic “pod” stuck to her body 24 hours a day, 7 days a week.  She has a plastic sensor stuck to her butt 24 hours a day, 7 days a week.  She carries a monitor about the size of a large blackberry that she is responsible for carrying with her at all times.  If it is lost, replacement is $400.00 the first time, $600.00 the second time…we’ve lost one to the swimming pool Gods.   Ellie has not yet complained one time about having these devices stuck all over her body, or hanging on her body to date.  She gets a new pod every 3 days and she gets a new CGM sensor on her butt every 7 days…if she doesn’t cry with the insertion of these two devices it’s because she had to really, really try not to.  The insertion of the pod canula is a small sting, the insertion of the CGM sensor is like sticking a metal McDonalds straw 1/2 an inch into your skin.  I know this information because I have tried both devices on myself before I put them on her for the first time.

4.  Refer to number 3.  Just because Ellie is only 4 does not mean that she “doesn’t know any different”.  Ellie absolutely knows she is different from the other kids around her.  She knows that she will be different for the rest of her life.  She knows that other kids just eat when and what they want without having to tell their mom to inject insulin.  She knows that they don’t have to leave school in the middle of class because of their number.  She knows that they don’t have to have a finger poke before they go running for the playground.  She knows she has diabetes, specifically Type 1 diabetes.  She is not adapting to it without some pain, disappointment, and frustration along the way.  Even I, her mother, have uttered that I was glad that IF she had to develop Type 1 in her lifetime that it was when she was young so she wouldn’t have a “before diabetes”.  I have since realized that I was ignorant and that statement is false.  Ellie suffers the loss of freedom and the pain (emotional and physically) of this chronic disease as if she’s known the difference all along. 

5.  To date there is no one on THIS EARTH that can say what causes Type 1 diabetes.  That statement SHOULD eliminate all THOSE questions.  Genetics you say?  What isn’t genetic?  Isn’t genetics the root of all things living?  Type 1 right now is like The Happening (movie by M. Night Shyamalan), some people develop it and some don’t…genetics or not…there is no known cause. 

6.  I do not have diabetes, my daughter does.  Therefore I will now let her tell you what she wants everyone to know about Type 1 diabetes.

Mom:  What do you want everyone to know about Type 1 diabetes? 

Ellie:  Ummm, I don’t know what to say. (I wait a little and tell her there is no wrong answer) 

Ellie:  I think it’s a big job.

Mom:  What else do you think?

Ellie: I think that it’s very complicated because it’s a big, big responsibility. 

Mom: What else do you think?

Ellie: Diabetes is very complicated because…you gotta change your pod when you have to because the sensor should be changed at 4 days and the pod should be changed at 3 days…

Mom: Anything else?

Ellie: Yes, well…we go low with 2 numbers that’s ok because we can drink juice, or eat or cookies and when you go high then you have to have insulin, right mommy? (I said yes) and when you are right in the middle you can just go on…why are you smiling mommy?  (I said because you are sooooo smart my biggest girl!) 

Mom: One more thing that you might want people to know?

Ellie: Yea, (sigh) Dogs sometimes have it and sometimes cats do too, everyone has it!  

And that my bloggy buddies is the greatest end to a list of thoughts I have ever witnessed!  She is beyond her years I think! 

Happy D Blogging day and I look forward to reading everyones 6 things!!! 

Love to all,

Sara and Ellie Lee

   

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The D Olympics

I love this idea!!!  It looks like it started with Joanne at Death of a Pancreas…

Catagories or Events as listed:

Shooting- We too have the pump, so shots are not an issue for us anymore.  I do have to say when I look back at the shot days I remember just how damn hard it was to do them.  My mother and I were the main shot givers and we both hated doing it.  I never actually got good at it (in my opinion) just a little quicker at it.  If anything, it started to get harder for me right before we got the pump.  We do however still have a bit of a ta-do when changing the pod out.  It’s a little more of a ta-do than I would like, but she’s 4 and she has little control over most of her D management so I try to let her have something she controls within the process of managing this beast.  Pod and Dexcom changes are pretty smooth so I’m giving myself a GOLD!  ( I won’t get too many Golds so I’m giving this one to myself ’cause I can!)

Synchronized Living-  (the ability to balance carbs, insulin, exercise, growth spurts, illnesses and hormones; and still achieve reasonably good numbers)  Welllll, I don’t think I can really say that I qualify yet.  I have only been a D mama for 10 or so months, and she’s only 4…Soooo really I haven’t even had my ass handed to me yet!  She rarely throws any ketones, she goes high often (do to meals and insulin timing), and though she’s been growing according to the scale and tape measure, I don’t think I’ve really seen a huge insulin change that constitutes a “growth spurt” at this point.  We only have 2 basal rates and one carb ratio, the rest we just “wing it”.  So not qualified at this moment, will try out for event next year!

Speed getting ready-  Ya, gotta bitch on this one!  (Sorry Ray)   I have a 1-year-old and a 4 year old…the 4 year old has Type 1 diabetes.  Both of these children, when taken out of the house, require bags, supplies and shoes.  I too have a bag (purse) and require shoes.  For some reason in this house, when we have a plan to leave the house, whether its to go over to the in-laws, to an event or just out to dinner…everyone in this house that would be capable of helping…disappear, off to some place where apparently other things need to get done before we leave.  I have yet to figure out what those OTHER things are, but I will say that it totally pisses me off that I am left to get all of my gear (if you will), get the two little ones dressed, socks and shoes located and on feet.  Then the packing of the bag.  Bottles, snacks, food if needed, diapers, wipes, cups and little I’m bored toys or trinkets.  Then the D bag…double check.  By the time this is all done…everyone has scattered about and I must regroup.  Ugh!  By the time we get half way to the car to load I just want to turn around and go back in and call it a day!!!  So I guess what I would qualify for is not the speed, but the endurance of this category!  And the loudness of my voice when I finally start locating help from others in the house…then we are all pretty speedy as a group to get all gear and children in the car!  (I’m not sure how long it takes the Duggers to load up…but can you imagine?) Silver for effort and ultimately getting it done!

10 meter dash- I just jumped from the 4th step of the stairs over a 3′ tall gate and ran 20 feet in less than 2 seconds when I realized that Ellie was being awfully quite downstairs today and laying on the couch sleeping with her eyes half-open and mouth all the way open!!!  (HATE it when she sleeps that way, it creeps me out!)  I get a Gold for speed of reaction to any alarms, intuition that something is amiss or low numbers that pop up here and there anytime 24 hours a day.  I’m a quick mover in emergencies (real or perceived) regardless of conditions!

WAG-ing (Wild Ass Guessing)-  Is there any other technique to carb counting?  Didn’t know?! HA!

Juggling-  Silver, I can do the juggling of various tasks if forced.  However, I don’t like to, so if someone else is in ear shot (like an 800 foot radius ear shot) then I recruit immediately!

Biathlon- (combination of two sports) Daily! Taking care of Ellie and Jack-GOLD BABY!

Accuracy-  Welllll, I’m pretty sure we always bolus correctly for food and I’m pretty sure the basal is ALWAYS right on…it’s the diabetes that gets it wrong all the time! GOLD!

Wrestling- Bronze (needs work) Ellie is going through some growing pains right now, little more attitude, little more bossy and demanding…just a little bigger than her britches lately.  There have been some fits that I didn’t catch on to the fact that she was experiencing a pretty rapid BG drop at the time.  I have caught it within minutes of the behavior, but I still feel bad for not catching on right away.  Thankfully she has not held it against me to date!

Swimming- Gold.  We will swim and swim and swim until she can swim stronger and faster than us.  No matter how long it takes we will be Gold in this category.  We have no choice, nor would we ever ask for one…except for the CURE of course!

Looking back I guess I gave myself a pretty high metal standing…Hmm.  Pretty cool!  Thanks for the game everyone.  I like these! Who’s next?

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Paralyzed (part II)

I’m not sure I’ve met a life challenge of this caliber” (quote from previous post)

I am out of the dark at this point, just a little cloudy here and there. I read my previous post so I could complete it with part II.  It seems when you write down what you feel or your experiences, you can see much clearer re-reading what you expressed. Quite frankly it was a pretty lousy post for anyone reading it but me! HA! Choppy and bouncy…jumpy and confusing…which is what state I was in, so for me it made sense!

I can’t blog as much as I would like to. Mostly because I can’t find enough time to sit in peace and tap out some semblance of literary sense and partly because I enjoy reading my DOC buddies blogs every night…and by the time I’m done reading everyone else’s…well “it’s” been said!

So with the passing of a little too much time in between the two blogs, here is the closing to Paralyzed…

I have, since Paralyzed (part I), made some pretty major decisions regarding my abilities, my tolerances, my families priorities, and our needs as a family. First and foremost, I am quitting my job. This was initially decided out of desperation that fateful morning that I tore out of the driveway at 6:40am in a rage (like maniac rage) leaving behind a very confused husband (who I verbally accosted) and my little girl…in a panic and frantic due to pump site pain. Having to leave my little girl with the look of fear and desperation for me to fix her pain so that I could avoid getting written up or fired at work was not a position that I ever wanted to be in again. It’s not fair, and not like “life’s not fair”, like it’s NOT acceptable FAIR that I cannot tend to my children in an extreme situation (to her it was extreme whether it really was or not) because I have already over stretched boundaries for the other situations that have come up since D Day, January 19th, 2010. My boss has been an amazing individual over the last year. His compassion was extended to me without me even asking…but there is a limit to his ability to protect me and my job from the corporate expectation of DEDICATED WORK!!! I have met that boundary. I am unable to dedicate my mind, time and care to my position at work anymore. So I have given notice to leave at the end of the year. Financially, this will be a bit interesting at the least, and crippling at worst…but necessary none the less. I have however, come up with an income alternative…Daycare! Yes, in home daycare. At the moment my mother takes care of my children during the day. She and I will now join forces and take in a few extra Little Peeps (Ha! Name of said daycare) and keep the ship afloat!!! I’m feeling very positive about this decision. It will free me (and my mother for that matter, alternating of course) from the 7am to 4 or 5pm commitment that requires my full attention and allow my mother and I to double team the daycare and Ellie’s diabetes management. With a small number of children she and I will be afforded more freedom for one of us to leave when necessary (doctors appointments, pre school runs, emergencies, etc). And of course I think my mom and I would make rockin’ daycare providers!

Next is the husband. I sort of do things based on my perspective of efficiency and logic. I also do things quickly (most things). This has left my husband at a bit of a loss in how to be of assistance in the day-to-day care of our family and left him out of a lot of the hands on diabetes care. He knows what to do and he knows what is going on most days. However he has unfortunately been an observer for some time now. This wasn’t because he did a duck and run…this was because at the time MY fear of the D over-road anyone else’s needs or consideration. We have now reached a plateau of sorts…My fear has reduced to a more reasonable level and my abilities have been determined, through trial and error…I no longer can bear the load of life with D, a 4-year-old (D aside), a 1-year-old, a couple of step-daughters, the x-wife, parents, in-laws and for the moment a full-time job without some serious assistance!!! Duh??? Ya, I know…but as you all know…when D enters your life, you do things that make no sense and you do it with the same panic and focus that comes with war! Hind sight is 20/20 and though we did exactly what we “could” at the time and we did it with some semblance of grace…I definitely have overdone some aspects. We are better for the wear I think (there was a little bit of wear) he and I are actively working on some positive coming togetherness that should afford us both the relationship and sanity we deserve! All is good as they say.

Even writing this post I feel very relaxed and…well happy. D takes so much of our sense of control away. I assume any chronic condition does. It really is the boogie man in the shadows sometimes…I won’t let it beat my daughter, I will do whatever it takes to keep her as safe as I can. I promise that daily. Now I have to watch MY back, we ALL do…we have to make sure that we don’t become the collateral damage…we have to make sure that we know what the D is doing to us through our loved ones…I found myself fighting (angry fighting) an invisible, incurable, never-ending, non-tangible beast. The boogie man. I won’t win, the beast is here to stay…but I am figuring out that I must make sure that the beast doesn’t win either…I want it to be a wash, no one wins no one looses. Only then will we as a family have come out ahead…guess I shouldn’t take for granted that there are few times in life when a wash IS a like a win…

I guess I should figure out how to truly accept that this time, with this thing called diabetes all I can offer my child, my little girl, is a wash…

And THAT is the caliber of challenge I am facing…

(wish me luck, ’cause this is really, really hard)

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Naked Pancreas!

Dues to Reyna for such a good idea!  I just HAVE  to say…YET AGAIN how damn happy I am I discovered all you ladies and gentleman!  I cannot express to you all how much you heal me on a daily basis, if you ever doubt posting…or decide that your just spinning your wheels posting…please know that you all are my air and more often than not my sanity. 

Now to NAKED PANCREAS!!! 

What kind of insulin management mode do you use?

 We use the Omnipod.

How often do you inject/change pump sites?

Every 3 days we change the pod.

What type (s) of insulin do you use?

 Novolog

What are your basal settings?

12am to 7am .15
7am to 12am .20

What are your correction factors?
1:150

What are your meal ratios?

1:20 (around the clock)

What do you do for activity and/or PE?
We don’t have a set plan still on the activity levels. She’s only four and we are only 9 months or so into diabetes so we usually just give her uncovered carbs if she’s going to be really active. She did swim a lot this summer and she went low pretty frequently at first. It usually was just a matter of letting her eat and not covering the carbs (swimming makes you hungry anyway!). I will say that the most fascinating lows or drops in blood sugars are the ones that come from just being in the sun???  Sedentary and in the sun and she’ll drop in no time?!  I don’t know why but that fascinates me.  Our biggest challenge right now is getting the “timing” down.  My gut tells me we are fine on the settings, but we are missing peaks in insulin and the digestion rate toO often.  We still have to wait and see what she eats before we can bolus…so we don’t have much advantage right now over timing.  We do try to do as much pre bolus at breakfast as safely possible to try to catch that nasty first meal spike and we occasionally hit it right on! Yea!

 How do you manage Pizza, maccaroni and cheese, or any other difficult to manage foods?

I read a lot about pizza being an issue, but I can’t say we have too much of an issue???  I usually let her eat pizza at her own pace and I don’t worry about bolusing to quickly after, but I can’t say we have an issue with it (which from what I gather is not the norm).  Mac and cheese???  She rarely eats it anymore so I can’t even tell you?!   Ellie ate quite a few different things until she was about 2…then she became one of those kids…sadly she now eats about 5 things and none of them are exciting or from the earth.  Until recently I blamed myself, but I actually think it’s just her and when she gets to school and sees other kids eating a variety of foods and enjoying it, she’ll come around!  (at least I hope)  The only benefit to her picky way is that we pretty much have the bolus down on everything she eats because the child eats the same thing every day, just in a different order! Ha!

How do you prefer to manage your logs/data?

Wellllll I don’t really manage them as well as I probably should.  When Ellie was diagnosed my mother and I logged and logged and logged everything.  We used smart charts and made notes daily.  Then the Dexcom and the OmniPod came (at the same time) and we slowly began to rely on the Dexcom to keep records.  We tried to stick to the paper logging…but as you know it can be quite a challenge!  We can enter the bolus amount and the food amount into the Dexcom and then print it out and have a visual graph that shows when she ate, when we gave insulin and then we can look at the valleys and peaks and determine where corrections or adjustments are needed.  I usually get really focused for 2 weeks before our endo appointment and make sure that all the information is in the Dexcom.  Then I print out the two weeks prior for Dr. C. We line them up on the desk and  look at them looking for patterns.  Again…she eats no variety so there really isn’t much to learn food wise at this point.  But it seems like (at least to me) we just need to take it day by day right now.  I’ve made a few changes here and there since she was diagnosed…but really.  It’s been pretty much the same amount of insulin.  I guess her TDD has gone from 9 or 10 units a day to 12 or so in the last couple of weeks so I may be changing some things soon.  She’s been running high for the last few weeks and then today…2 low numbers (not too low, but lower than we’ve seen lately)  So now we wait…and wait…and wait to make that little move and see if we can get closer to target. Ugh! D Sucks.

P.S.  I would also like to excuse Meri from having to participate in the Naked Pancreas posting…I can’t imagine posting 3 PWD’s stats???  HA!  And if she does post them…and does it from memory…We MUST nominate her for some sort of an award!!!  Loves Meri!

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